this post was submitted on 10 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] [email protected] 60 points 3 days ago (1 children)

I was turned down with genitofemoral neuropathy because the government insists on record of ongoing treatment. The only continuous treatment for nerve damage is pain management, and I can’t take opiates.

I’ve paid into Social Security for 25 years, yet I can’t access my own money when I’m in desperate need of it. Fuck this system.

[–] [email protected] 10 points 3 days ago (1 children)

This sounds silly, but could you fill your opiate prescription and just toss the pills? Maybe you can find a doctor willing to record your ongoing treatment as whatever works for you.

[–] [email protected] 6 points 3 days ago

The disability attorneys I’ve spoken with say it’s a double-edged sword. The government is also reluctant to support indefinite opiate treatment (with good reason). They said I’d have better luck applying for SSI citing the psychological effects from the pain rather than applying for SSD for the disability itself.