this post was submitted on 16 Nov 2024
283 points (97.0% liked)

Showerthoughts

29707 readers
1308 users here now

A "Showerthought" is a simple term used to describe the thoughts that pop into your head while you're doing everyday things like taking a shower, driving, or just daydreaming. A showerthought should offer a unique perspective on an ordinary part of life.

Rules

  1. All posts must be showerthoughts
  2. The entire showerthought must be in the title
  3. Avoid politics
    1. NEW RULE as of 5 Nov 2024, trying it out
    2. Political posts often end up being circle jerks (not offering unique perspective) or enflaming (too much work for mods).
    3. Try c/politicaldiscussion, volunteer as a mod here, or start your own community.
  4. Posts must be original/unique
  5. Adhere to Lemmy's Code of Conduct-----

founded 1 year ago
MODERATORS
 

People who haven't really resumed socializing at levels they used to, people who lost the capacity to regulate during interpersonal interactions, people who lost trust in others... I encounter lots of partial returners out there

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 69 points 20 hours ago* (last edited 20 hours ago) (2 children)

Small rant incoming:

I'm actually still stuck inside more than in the Pandemic. Essential worker so I still went outside daily until i never got my energy back after having covid for the 5th? time.

About 3 years of doctors not really knowing how to treat it and encouraging me to keep trying what i could each day, which led to me basically destroying my body, until i got one of my countries leading experts who immediately told me to take bed rest the second i feel tired.

Since my immune system is basically gone i got a bunch of other illnesses some of which will probably never go away since the meds only alleviate the symptoms.

Upside is that I've been trialing a bunch of expirimental treatments for the specialised clinic that is opening soon, some of which had small but immediate effects. So at least those that will get diagnosed in the future don't need to wait as long hopefully.

[–] [email protected] 3 points 9 hours ago (1 children)

I got ME/CFS (closely related to long COVID) that first started in early 2020, so this is very relatable. As everyone was going back to normal I was getting worse. Do you mind if I ask what had a good effect? The only thing I've found that helps (other than rest and pacing) is nicotine patches for the brain fog.

[–] [email protected] 3 points 6 hours ago (1 children)

Currently seeing some decent effects from low dose naltrexon, although it seems to shift my energy more than it increases it. The further I'm from having taken my daily (evening) dose the better i feel, but in the mornings I'm extra tired and can't really focus my eyesight.

But it's hard to separate the side effects from the multiple other treatments I'm building the dosages for.

[–] [email protected] 1 points 6 hours ago

Ah yeah, I've heard some promising things about LDN. My doctor won't prescribe it for me though. There's apparently a different version of it that's being researched but it's early days. Good luck with all.

[–] [email protected] 7 points 17 hours ago (1 children)

I'm glad to hear you live in a country where you can get more specialized support! I hope the new treatments pan out

[–] [email protected] 2 points 6 hours ago

I got really lucky to get the right expert as my new doctor, since the upcoming clinic would only treat about 1000 patients a year with an estimated 60k waiting for treatment.