this post was submitted on 30 Oct 2023
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Asklemmy
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Wow that sounds heavy, first time I ever heard of it. At what age you got it diagnosed and treated?
First Dr visit was sometime in 2018 with surgery in Q2 2019'ish. I would have been 37'ish when symptoms first started coming on.
From what I've read, only 1 in 200,000 have it so it took multiple Dr's to finally find one who said to me, "I was just at a convention last month and heard a talk about a condition like yours and just happens one of the top Dr's on achalasia lives here in our city." Few months later and I was scheduled for surgery and it's been worlds better post-surgery. :)
It definitely affects my life every day with what I can & cannot eat (bread is a nightmare) but I take it in stride and drinks copius amounts of water with every meal.
I'm still impressed about it, especially learning it happened in your adulthood. Thanks for sharing!