this post was submitted on 25 Jan 2024
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AskBeehaw

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Some of my friends have been and I was wondering if I could learn anything from y'ill.

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[–] [email protected] 2 points 7 months ago

Thank you!

I was only recently diagnosed, and I am into my thirties now, which means I am a "high masking" individual. I am learning very slowly how to communicate what I actually feel and think, instead of saying what "would be appropriate to hear from someone who fits in". It can be very challenging.

I have family and friends now who are supportive, and they do a lot of things that help: we normalized non-verbal communication (texts, gestures, etc, - I have read about communication cards as well). Also, it is ok to be unable to say anything at all sometimes, especially during an intense moment.

Something I have noticed about myself which is also fairly typical (AFAIK) for people with ASD is that our attention and focus work differently than in most people. I seem to be unable to divide my attention up between things: I am either hyper-focused on something singular, or relaxed. So when I am focused, and something distracts me, it is distressing. Imagine someone you know suddenly startling you as you exit your home bathroom as a prank - getting pulled out of the focus feels sorta like that, minus the fear. When that happens, the frustration can be tough to control. If I suddenly snap at someone when they're trying to reach out - that is the reason most of the time.

I wish I could help you more - but I am only learning these things myself now. I used to really struggle with communication as a kid, and it turns out I just didn't have access to the support I needed.

When it comes to bullying, I think the most effective way to get rid of it is to start deliberately calling it out. This may be tougher than it sounds: sometimes we have to overcome a lot of bias and fear to call out a bully. Once I nail that, I'll think about a way to teach it to a kid.