This genuinely felt like a weird scam to me. I had no idea it existed, but apparently there's a whole host of childhood conditions that can cause childhood dementia.
That's very upsetting.
The donation link is above all of the social media (Facebook, Twitter/X, etc.) ones so the focus seems on bringing in money rather than raising awareness.
Nations used to have functioning government systems that would fund this stuff - not just in children but in adults too. But right-wing parties seem in control of everything lately, thus such children that provide less tangible benefits to society will get triaged in terms of available funding.
I have never heard of childhood dementia and a quick Google search seems to point only on this website and other sites with exact same wording.
The numbers they give seem impressively high for a disorder that is barely documented on the internet.
The symptoms are basically normal children behavior.
This looks like a scam design to scare parents into buying something.
It might look like this by accident but I would do a lot more research if I were to donate or take their advice.
Yeah, I did some research and it's really weird. The majority of sites that talk about it are Australian and it's barely, if at all acknowledged anywhere else in the world. I found some sites that seems legit:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3943077/
https://www.adelaide.edu.au/newsroom/news/list/2023/09/18/devastating-causes-of-childhood-dementia-revealed
https://www.alzint.org/news-events/news/shining-a-light-on-childhood-dementia/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486052/
https://www.dzne.de/en/news/background/childhood-dementia/
https://rareportal.org.au/rare-disease/childhood-dementia-disorders/
https://rarediseases.org/organizations/childhood-dementia-initiative/
I think that maybe it wasn't recognized before due to how rare and weird it is, like ptsd was, but I can't say for sure if it's not a scam.
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